When someone you care about is diagnosed with dementia, it is completely natural to feel a mix of emotions – fear, confusion, sadness, or even relief that there is now an explanation for the changes you have noticed. This period is often filled with “unknowns”, and one of the first steps towards understanding and managing dementia is having an open and informed conversation with your GP or medical specialist. Yet, for many, knowing what to ask or even where to begin can feel daunting.
The Royce Simmons Foundation encourages families and carers to view the GP as a partner in care – someone who can not only confirm or clarify a diagnosis but also provide guidance on ongoing management, support services and referrals to specialists. Preparing for this conversation is key to getting the most out of your appointment.
A GP is often the first point of contact for anyone concerned about memory loss or cognitive changes. Early diagnosis and intervention can make a significant difference in managing symptoms and planning for the future. By asking the right questions and openly sharing your concerns, you can ensure your loved one receives the most appropriate care and support from the start.
It’s important to remember that dementia affects everyone differently. Your GP can help tailor advice and support to your loved one’s specific needs, whether that involves medication, lifestyle adjustments, or referrals to allied health services such as occupational therapy or speech pathology.
Before visiting your GP, take time to prepare. Write down any changes you have noticed in your loved one’s memory, thinking, or behaviour – including when these changes began and how they are affecting daily life. Keeping a diary of observations, such as struggles with routine tasks or increased confusion, can help your GP build a clearer picture of what is happening.
Consider bringing a trusted family member or friend to the appointment for support and to help remember any information discussed. Having a second set of ears can be especially useful when there is a lot to process.
When you see your GP, it can help to prepare a few key questions, such as:
These questions can open up important conversations about care planning, early interventions, and what to expect in the future.
A dementia diagnosis affects the entire family, not just the individual. It’s common to feel overwhelmed, but seeking help early can make the journey less stressful. GPs can connect families with local dementia support groups, counselling services, and resources that help carers understand what lies ahead. The Royce Simmons Foundation encourages carers to ask their GP about these supports, as they can provide both emotional relief and practical tools.
Starting the conversation with your GP about dementia may feel intimidating, but it is a vital step in building a care plan that ensures the best quality of life for your loved one. With preparation, the right questions, and ongoing support, you can face this journey with greater confidence and clarity.